*Instead, we learn how to save lives by studying huge datasets on the medical histories of millions of people. This information helps us identify the causes of cancer and heart disease; it helps us to spot side-effects from beneficial treatments, and switch patients to the safest drugs; it helps us spot failing hospitals, or rubbish surgeons; and it helps us spot the areas of greatest need in the NHS. *
This extract comes from the is article in The Guardian Click Here
It shows how such data sharing has huge benefits if handled correctly.
With your medical condition I would have thought you would have welcomed it.